this post was submitted on 31 Jan 2024
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I was gifted the tests multiple times. I didn’t take the test because of my own data privacy concerns.
The thing I am concerned about is not necessarily 23andMe selling the data, but rather being sold off and having another company come in and being allowed to do what they want with it. I’ve seen that happen before with other data collecting companies, and I’m not sure to what extent the policies put in place by the collection company applies to the new company that buys them and their IP.
I imagine in this case that it would result in a massive class action suit, but for me the risks of having the data made available to, for example, insurance companies who could then deny coverage was just too high of a risk when the main payoff for me would be to find out my family comes from Ireland but that I’m also 5% Jewish.