this post was submitted on 09 Feb 2024
517 points (92.2% liked)
Technology
59534 readers
3195 users here now
This is a most excellent place for technology news and articles.
Our Rules
- Follow the lemmy.world rules.
- Only tech related content.
- Be excellent to each another!
- Mod approved content bots can post up to 10 articles per day.
- Threads asking for personal tech support may be deleted.
- Politics threads may be removed.
- No memes allowed as posts, OK to post as comments.
- Only approved bots from the list below, to ask if your bot can be added please contact us.
- Check for duplicates before posting, duplicates may be removed
Approved Bots
founded 1 year ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
I'm not familiar with that particular piece of software. It may not be enshittified... yet. But it only take someone in the company to makes it to show the can make some ad revenue by plopping a bunch of ads on the site. Or even worse, they could start selling the data, which is particularly worrisome given it's medical data. Think about how much pharma companies spend on advertising and how valuable it would be to them to be able to do targeted advertising directed at people the know have conditions that they're selling treatments for.
The data on a site like that is ridiculously valuable. Sooner or later someone may decide to give a marketing company contracted by a big pharma company just one little peak at some data.
It's only illegal if you can't afford the fines. As businesses routinely prove, if your company is big enough they just budget for fines.
HIPAA fines are massive for now. So the cost risk doesn't work for them yet. But I'm sure some politicians will find a way to make it just the cost of doing business soon.
The other option is "It's too expensive to go after them." See: Taxes.
They will find a way around it. Maybe they will claim it doesn't count because it is tried to metadata and not an individual person.
HIPPA is no joke and companies actually don't fuck around with it. It's not worth it. It's one of the few pieces of consumer protection out there that has real teeth. Under HIPPA, you are expressly forbidden from using personal health information for anything unrelated to that patient's care, and companies can and are fined heavily for violating it.